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@bearbayou Good Morning,
This is great news, I'm so happy to hear this! Definitely worth celebrating!
I think your son's vocabulary improvement could stem from several things working together: the XCopri introduction and increase, the Trileptal reduction, and fewer seizures overall.
Is he still experiencing focal seizures? Have they decreased or stopped since starting XCopri? I ask because focal seizures can really affect vocabulary – I've experienced this myself. When I became seizure-free (or had only occasional seizures), I noticed a clear improvement in my own word-finding and verbal fluency.
If I understand correctly, Trileptal was reduced about a week ago. How much did the doctor decrease it?
Also, your son started XCopri last November, right? When the dose increased to 200 mg, was that when you began noticing these vocabulary changes?
During my own medication adjustments, keeping a daily diary helped me connect the dots between medication changes and improvements. It might be helpful for tracking these positive developments!
I hope you don't mind all the questions – I'm just trying to get a better picture of what's helping your son progress so well.
Keeping my fingers crossed for more improvements to come!
Have a wonderful weekend!
Chris
Replies to "@bearbayou Good Morning, This is great news, I'm so happy to hear this! Definitely worth celebrating!..."
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@santosha -- good morning--
To answer your questions-- which are great ones because they ask me to notice more.
1. is my son still experiencing focal seizures? yes, they seem to happen, but not as many and -- he's become more attentive to "them" -- sometimes he'll seek out a quiet place (leave grocery store & sit in car), not go to a social setting, etc... where before he kinda just went alone with whatever.---thus, he seems more self-aware (physically and mentally/emotionally).
2. Trileptal --now takes 25 mg LESS daily.... it'll be a slow process, thankfully.
3. When Xcopri levels and vocabulary increase, etc:
I started noticing at 150 mg that his vocabulary was increasing..also, of all things, his inner wisdom. Yesterday, gently, he put his hand on my shoulder and said "Mom, why do you begin the day by getting on the computer? " I'm aware of this habit, but having it come from him---well, this morning began with my opening a book I've meant to read for weeks.
--About your keeping a dairy: I've been doing that for my son --at wise suggestion of his neurologist.-- now I realize I've gone slack in this regard--...yet ---just yesterday, for 1st time ever we had a 'letter' addressed to son's Nurse Practitioner (NP)--- son & I had worked on this together. Points were re: what's improved, what concerns he has, and help he needs
(NP) nurse practitioner told me 3 different times that the 'letter' was 'very helpful.'