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Tymlos-Timing, travel and meds, Oh My!
Osteoporosis & Bone Health | Last Active: Feb 13 11:43am | Replies (45)Comment receiving replies
@beachesanddreams I know what you mean about side effects..... I have lupus as well and have had previous battles with drugs and side effects. It's so scary. I''m tiny as well, 4 ft 11 and 105 lbs. My spine numbers really decreased in one year although I have osteoporosis in other areas as well but my spine is -3.5......I asked my Dr about titration as well and she said not a good idea. The studies done are for the full dose. I was on Fosomax for 4 years from 2013-2017 and the last several years the benefits from it have gradually worn off. I've been betting DEXAS every year. I'm seeing an endocrinologist for the osteoporosis. My rheumatologist is for the lupus. My endocrinologist will send me for bloodwork after I've been on it for a month to check my kidneys. I have a bunch of blood work I'm having done Wednesday that me primary Dr is doing. I want to make sure that everything looks ok before I start this medication......Let's see what next week brings. I'm still waiting for my Dr to send the RX. Hope to talk soon.
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@cpog Thank you for the lovely hibiscus flower! I love that color! Do you grow them?
It’s amazing to me how synched you and I are with regard to “covering all bases” prior to starting.
I remembered to call my dentist yesterday afternoon to keep him in the loop and see if he’ll still keep me as a patient once I start.
I, too, did Fosamax for four years, and it worked really well, until it didn’t anymore. No doctor ever suggested taking a break from it once the numbers looked good, which is what is supposed to happen. I did really well on it side-effect wise. I didn’t have a single one.
I feel if we are able to maintain just a little control over what we put into our bodies - like a titrated dose to start - that would go a long way in feeling both supported by our doctors and comfortable that the medication will be a success.
Perhaps this is the point I must make with my doctor.
It’s very hard having both an autoimmune condition and osteoporosis at the same time, though I’ve learned the two often do go together. I feel for you on that front, I really do.
Good luck on your bloodwork this week. I’ll be thinking of you.
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@cpog some doctors are fine with titration. I don’t think I could’ve started with full dose. I started with 2 clicks and was able to ramp up quickly. At 5 now and hoping to keep moving up. Am so glad I was able to do it this way. One thing to consider is something I (and some others on this site) have experienced is that Tymlos seems to have some anti-inflammatory properties (some studies on this) and it has been great as an autoimmune patient. Good luck.