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Profile picture for charliegirl @charliegirl

@donaldrobert Hi. I totally get how lonely you have become. It sounds like you were in a constant state of high expectations from every direction of your life, prior to getting sick. Sometimes people don't get why you can no longer be that superhero. So they turn away. Those relationships are not worth pursuing. I had a very active social life as well as work and volunteering with animal shelter and rescue groups. Every part of my life was important to me. but when you get a chronic illness causing severe pain, you really do find out who your "real" friends are. I think it is important not to rely TOO heavily on those who are your support people now, including your wife. Find in person non profit groups who support your illness. Those are REAL people, who understand your struggle. Also find and rely on groups like this. There are many various support groups on Facebook. It might take a little effort to find the right fit for you. This is a great group. I hope you are having a good day today. One day at a time!
Lori

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Replies to "@donaldrobert Hi. I totally get how lonely you have become. It sounds like you were in..."

@charliegirl frankly, I haven’t found any chronic pain support groups on FB or chat rooms. Could you be more specific? Thanks so much!

@charliegirl
Hi Lori,
Sorry I am so late replying to you. I seem to have missed a whole day’s worth of e-mails.
Thank you for your very kind words and thoughts and advice. It still amazes me how people that I worked/ran/volunteered with, whom I really thought were more than friends I just happened to have been people I happened to have worked/ran/volunteered with.
But you are correct, I do have a few good friends. Two have their own but different chronic issues. The nice thing is you can say things like “this week is the best I have felt in ages” (which I can honestly say I have not uttered in at least a decade) and they know you are not healed or fixed you just feel a warmer shade of feeling like death warmed over.
Sorry for being so very long winded. Just really wanted to say thank you so much for your kindness and thoughtfulness.
Don