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What treatment are you receiving for Baroreceptor failure?
Head & Neck Cancer | Last Active: Jul 15 11:58am | Replies (9)Comment receiving replies
My husband was diagnosed with baroreflex failure last year about this time. We live in a major Midwest city and could not find a doctor that could help him. Cardiologist said his issues weren’t caused by heart. Neurologist couldn’t figure a thing out.
Found a report on long term side effects of throat cancer. ( My husband finished treatment in 2011). One of the authors of the report was an autonomic specialist in Indy. We were able to get in to see him and my husband was diagnosed with Baroreflex failure. That doctor put him on 100 mg of Droxidopa to keep bp from going to low during the day and Nefedipine at night to prevent it from going to high.
After seeing doctor in Indy we got a second opinion at Mayo in. Minnesota. They confirmed diagnosis although didn’t agree on meds. But, they also said if it was working they said to stay on that. There are days he may have to take an additional Droxidopa, but all in all he’s doing pretty good now.
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@thare it took me several years and about $5,000 dollars to get a diagnosis, only to be told by a cardiologist that I'd have to learn to live with it. Well, he wasn't far from being right. There is no cure, and it can get worse, so the primary concern is treating for quality of life. If he has a protocol that works, that's a good thing. It is also good that he is seeing a autonomic specialist. Research recommends that we have all the specialists we need for the symptoms we are experiencing. I recently read research that suggested the problem stems from blood vessels becoming too rigid due to radiation scarring for the baroreceptors to detect BP changes. For more information, you might want to check out Google Scholar for the latest research. I hope he continues to manage it successfully.