I'm sorry to hear about your challenges, and I can surely relate. I was treated for SAC (T2, NO, MO). Although it was early-ish stage, I was told by the care team that I had to undergo the NIGRO protocol of chemoradiation regardless.

Like you, I had a change in my bowel function thereafter, but nothing quite as severe as you describe. Recently, about one year ago, I started experiencing fecal incontinence, which I had not experienced (at least not severely) in the 17 years post-treatment. My quality of life has similarly taken a nosedive. My colorectal surgeon explained that this can start happening even decades after treatment.

I am scheduled to undergo an Anal Manometry test to evaluate my sphincter function and pelvic floor strength. We'll see what that entails. My doctor mentioned I may be a candidate for a sacral nerve stimulator device––sort of like a pacemaker for the sphincter muscles. He says for many patients like us it's a game changer.