@hopeful33250 Thank you for the welcome. Really feels good to have a community to chat to about this!

No, I feel perfect. I guess the odd digestive issue, but nothing to complain about. I'm trying to eat healthy, exercise and keep positive.

I live in South Africa and haven't found an NET specialist however my oncologist does have a few patients with NET's. I have bloods and see my oncologist every 4 weeks when I go for my Sandostatin injection. I also see my interventional radiologist every 3 months for an ultrasound then get a PET scan and MRI scan once a year usually 6 months apart.

Based on the feedback I've seen on this post, it does seem that PRRT is a solution I should review only later in my journey. My mind is a little more at ease!