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Tymlos-Timing, travel and meds, Oh My!

Osteoporosis & Bone Health | Last Active: Feb 13 11:43am | Replies (45)

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@beachesanddreams I will definitely let you know! I have all the info ready but am still waiting for my prescription to go to the specialty pharmacy from the doctor. It's already been approved by my insurance though. When I have the medication in hand, I am supposed to have an appt with my drs office to go over everything and the instructions. That's if I want, which I do. I will take any help I can get! Do you have your medication yet and have you done the first injection?

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Replies to "@beachesanddreams I will definitely let you know! I have all the info ready but am still..."

@cpog I have been approved. All I have to do is place the order.

I haven’t yet because I’m still gathering information to try to allay my serious concerns about side effects.

I spent all of last year dealing with very difficult side effects due to two drugs I was prescribed for a supposed inflammatory condition. I lost hair for 8 months. I developed more inflammation, causing me to have to see four different specialists. I’m off those drugs now, and am just relishing in feeling better, you know?

I want to deal with my osteoporosis, truly I do, especially because it isn’t even that bad.

I spoke with a Tymlos clinical educator at Radius yesterday, and while she was courteous and professional, the message was, if you have side effects, go to your doctor. There’s no information on how to mitigate them and make the drug easier to take.

The advice I’ve seen on this forum is the most helpful and comprehensive I’ve seen. Two rheumatologists have not told me anything about this drug, it’s just here, take this, I’ll see you in three months.

I want to start low and titrate up. Doc says no, educator says she has heard other patients do that but they can’t recommend it due to FDA guidelines.

I know I have to dive in. The educator told me they can do an injection instruction over the phone.

What gets me about so many injectables especially is that the dosage for small, slim women with few to no symptoms is the same as a 250-lb man with several to many symptoms.

This is the part where I have to take a deep breath.

Keep me posted…🙏🏻🌺