@sqindy
I am just seeing your comment and I am so sorry I haven’t acknowledged it until now. I am definately a real person. No AI in me. Mayo Clinic Connect is all real people, a safe place for you to, well….connect.

The link I provided earlier states, “ Asymptomatic patients do not require treatment. For patients with pronounced symptoms or complicated SM, the combination of tamoxifen 10 mg twice daily and prednisone 40 mg daily is the first-line pharmacotherapy; no randomized controlled trial of this regimen has been performed. Rarely, surgery may be necessary in cases of persistent bowel obstruction refractory to medical management. Sclerosing mesenteritis has an overall benign course in most cases”

You said you had asked for testing because you had symptoms, so that would leave you out of the ‘asymptomatic’ group. I am not sure if you would be considered having pronounced symptoms or not. (I am not a medically trained person). Regardless, it does sound like you have good treatment options. It may help for you to write down your questions and have a good conversation with your doctor or someone on his team.

You mention your doctor ordering nuclear scans and MRI’s following your recent diagnosis. What have you learned? How are you feeling?