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Neuroendocrine Tumor - no treatment plan method
Neuroendocrine Tumors (NETs) | Last Active: Mar 11 12:26am | Replies (102)Comment receiving replies
@tomrennie yes I had with and without contrast. My family practice doctor ordered the first test. With and without contrast and sent me to see a gastroenterologist, who did another test with Cat scans and MRI, with and without contrast, then referred me to a gastroenterologist surgeon. Who took a biopsy and pet scan. He said it probably warranted resection but said my diabetes would be worse and my quality of life would be worse without my spleen and he’d have to remove it with half my pancreas. Scared
Replies to "@tomrennie yes I had with and without contrast. My family practice doctor ordered the first test...."
Hi, how are you? I'm sorry to hear what you're going through. It might be helpful to identify what type of neuroendocrine tumor (NET) it is. Some tumors, especially pancreatic ones, can cause diabetes. Perhaps if it can be removed, those issues would be resolved. My wife had a pancreatic NET that caused diabetes mellitus. After the removal, everything went back to normal. I recommend that you ask a lot of questions and also read up on things to learn and protect yourself, not to scare yourself. I wish you the best of luck.
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@ceefer Who told you that you had a NET? Do you know what kind of contrast was used? There are different contrasts. I understand why you are scared. I am concerned for you. I know those symptoms quite well. I went down a very similar path.