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DiscussionAnyone go through duv/romi treatment before an allogenic BMT?
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Mar 4 8:25pm | Replies (24)Comment receiving replies
Replies to "@loribmt Today is the initial meeting with the transplant team, conditioning scheduled for the end of..."
@alxlo1 Just checking in with you to see where you are on the transplant schedule. From what you mentioned earlier I think it must be very soon. Please know that I’m here for you any time if you have questions or need a pep talk! ☺️
When is Day 0?
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@alxlo1 Ah, ok. I thought when you said you’re staring the process Thursday you meant you started day -6. ☺️ So you still have that to look forward to. The countdown usually begins with day (minus) -6 and when you get to day 0, that’s stem cell infusion day. Then all the days after that are Day +1, +2 and so one.
It’s perfectly normal to be apprehensive. I would think you’re super human if you weren’t. Though for me and a few of my friends who went through this, once we got back to feeling normal, we felt a bit invincible! We have super powers of a chimera. Having 2 sets of DNA. I often thought it would make great fodder for a good mystery novel.
If you need pointers, a nudge, moral support, answers, hand holding…I’m here, along with whom I lovingly refer to as my BMT posse, to help you along this unique trail to your 2nd chance at life. Keep me posted, ok?