← Return to Stable metastatic NET – should I be pushing harder for PRRT?

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Profile picture for tfoucaul @tfoucaul

Well, next week, I'll be getting my 4th and final lutathera-prrt retreatment. I'm also combining Keytruda as well. I had my initial 4 treatments back in 2023 I think. Generally, I take some anti- nausea meds for about 10 days after to ensure no nausea. I also drink lots of coffee/water/fluids after prrt as well since I don't want to kill my kidneys. I believe the major risks of lutathera are mylosuppression and or leukemia. These usually present themselves about 2 years after treatment. I'm not sure what the increased risks for the retreatments are since the RETREAT study ain't done. Wait and see, I guess. It's criminal that this treatment costs $750k in us but only $55k euros in europe.

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Replies to "Well, next week, I'll be getting my 4th and final lutathera-prrt retreatment. I'm also combining Keytruda..."

@tfoucaul I did learn yesterday on the NETs support group zoom call that myelosuppression and leukemia are the major risks of PRRT from Mayo's Net Oncologist Thor Halfdanarson. He agreed that they usually present themselves in about 2 years after treatment. He also suggested that there isn't enough historical data to be more specific than that. Please keep us updated PRRT recipients. We are learning through your experience. Thank you.