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Waited 11 months for Second Opinion Vent
Osteoporosis & Bone Health | Last Active: Feb 12 3:38pm | Replies (11)Comment receiving replies
@hungrybirder
So sorry to read this. The doctor's office was negligent and should have expressed a deep apology for not calling to reschedule your appointment, and for the error of canceling it without notification. The office should have given you the impression that your care is important and at the very least offered you the next available cancellation. If you're willing to give them a second chance, then go ahead and reschedule, and if you see the doctor, inform them of this incident and your opinion about it. But I wouldn't rely on this office for a second opinion. I have three osteoporosis docs, an endocrinologist, a rheumatologist and Dr. Keith McCormick, all three experts in osteoporisis. I continue to follow with all of them regarding treatment and management.
By the way, my forearm was also -4.9, and then increased to -5.1. It seems that DXA scans cannot accurately read cortical bone, but the scores should be consistent. It is known that Tymlos can help spine but may do so at the expense of the forearm. I did Evenity for a year and my forearm score still got worse. Now that may be because of some genetic stuff that I have. But generally speaking, doctors don't like to scan the forearm because they don't know how it interpret it. Their focus is on spine and hips. I have exercises that strengthen the muscles of the wrist and forearm and training to fold over and roll if I fall (vs reach out with my hands).
If you see this doctor, I would be interested to know what she says about DXA forearm scores and best treatment. Good luck!
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@roisin11
Thank you for your comments. I waited until I got in the right frame of mind to call again. This time a different person got the call and she was a bit more sympathetic and possibly helpful. She had no idea why the appointment was cancelled but noted that there was no comment in the file that they tried to contact me which she indicated was not acceptable. She was sending a message to the doc's PA and told me they have 48 hours to respond to me. Right. If I didn't hear anything to call her back and the issue would be escalated. Whatever that means She did believe seeing another endocrinologist might be the problem and I pointed out that I was seeking advice on my bones not on my pre diabetic status or the synthetic levothyroxine I was trying to replace which are also addressed by endocrinologists.
So we'll see but I don't plan to see her more than once if they get me in but that might take another 11 months. In the meantime I have a lovely endocrinologist who just happens to have a mother with osteoporosis so she is probably relatively up to date on treatment options.
Sorry your forearm didn't improve. I've taken some falls in the last year, including one last month tripping in an airport, where I landed on hands and knees; the knees got the worst of it. I do a plank routine almost every morning and frequently wonder if my arm will snap. So far, so good but I'm also small boned so never had great forearms. I'll keep you posted on what the Hospital System thinks of what happened as I'm recording my calls with them.
Good luck!