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Low Sodium Level

Autoimmune Diseases | Last Active: 6 hours ago | Replies (24)

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Profile picture for novakp52 @novakp52

@mmleal his is it under control? I too have SIADH and have had it act up for no reason and it scars me. ( already had one accident because of it. 121 level) How do you control it?

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Replies to "@mmleal his is it under control? I too have SIADH and have had it act up..."

@novakp52
I limit my fluid intake to 1000 mls a day.
In summer I can increase it to 1200 mls a day. ALL FLUIDS you intake must be counted. There’s an app on my cell that helps. You can set it up to remind you to drink water or any fluid.
I recommend you speak with your nephrologist or urologist. I live in a climate with 100°plus temps. Your dr(s) are your best go to. I tell you what works for me…all pts are different.

@novakp52 I have had my sodium level drop to 119, hospitalized several times because of it. I take sodium chloride pills every day, and this has got me through the last ten years. No explanation has ever been found. When I begin to feel weak, faint or sick, I take an extra pill each day until I feel better. Even an ordinary cold will have an effect on my levels.

@novakp52
A sodium of 121 is dangerously low. Having an accident at that level makes sense medically, and it’s not a personal failure. Anyone would be shaken by that.

I want to ask you one gentle question (only one):

Do you currently have a clear prevention plan from your doctor (fluid target, sodium strategy, and what to do if symptoms start)—or are you mostly reacting when it happens?
Your answer helps in a useful situation, not just textbook advice.