@sarahlee2 yes there are lots of people who are successfully treated! Some people do well with just Methotrexate. Others sometimes do better with other treatments like IVIg.

Steroids are usually recommended in the beginning as they work quickly on your immune system while you wait for the Methotrexate to kick in as that takes longer to work.

I am not the poster child for Tif-1 as I have multiple other autoimmune conditions plus steroid myopathy and adrenal insufficiency, but there are plenty of people living with different kinds of myositis who are being successfully treated and living full lives 🙂

My only advice is try to spend as little time on the steroid as you can. It works great but the longer you spend on it, the harder it is to get off it. Good luck - you’ve got this!