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monitoring granulomatosis with polyangiitis
Heart & Blood Health | Last Active: 16 hours ago | Replies (6)Comment receiving replies
Hello @dmeyer004,
I've combined your discussion with an existing discussion titled:
"monitoring granulomatosis with polyangiitis"
- https://connect.mayoclinic.org/discussion/monitoring-granulomatosis-with-polyangiitis/
As @jlharsh mentioned, I'd like you to introduce you to @ranjani1985 who recently started a discussion on monitoring granulomatosis.
@dmeyer004, you mentioned you have gone through first line treatments with little success and must now embark on more complex treatments. Are these treatments ones that you have worked out with your provider? Is there something in particular you are comfortable sharing that has you apprehensive?
Replies to "Hello @dmeyer004, I've combined your discussion with an existing discussion titled: "monitoring granulomatosis with polyangiitis" -..."
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@JustinMcClanahan
Yes, all the treatments so far have been in coordination with ENT, Rheumatologist, Neurologist, and colorectal doctors. The attack has mostly centered around my mouth, nose and sinus area. Although I have had colorectal problems. What makes me apprehensive is that the doctors in the area where I was treated have voiced opinions that I need more experienced providers with this medical problem and referred me to Mayo in Jacksonville, but it seems I may have problems getting treated there although I have an appointment on the 13th for their second opinion. I may need to find a different provider in the area, but I also know with this disease time is of the essence.