Daily Migraines - How do we function?

Posted by heysie @heysie, Jul 26, 2025

Medications, PT, sound baths, massages, the ice gel cap helmet thing, occasional fevers. The vice grips tightening on the temples. The thunder claps through the top of the skull. The bludgeoned feeling at the back of the head. The nausea - oh god the nausea. And the advice is to eat well and go for a walk and don’t overdo do it on the ibuprofen, which might as well be tic tacs at this point!

If any of this rings a bell or resonates, please join me in this conversation on how to survive and function with these symptoms and headaches as part of our lives. Granted, I’ve had two sinus surgeries for sphenoid sinusitis in the last year and an infection for meningitis, but the migraines remain and continue to develop the cruelest symptoms.

I need help understanding this and knowing I’m not alone. All I’ve got in my arsenal is rizatriptan and Tylenol #4 oh and topamax.

How about you?

Interested in more discussions like this? Go to the Headache & Migraine Support Group.

Profile picture for Cathy @njzmom

I’ve also probably “tried it all” over the past 40+ years of migraines! Most recently, I was having rebound headaches with imitrex. Neuro prescribed Ubrelvy. It worked, but I was having 10-15 headache days/month, so she suggested Qulipta. I am now down to 2-4 headache days/month!!!! Wooo whoooooo!

Although I hate taking medication, I am so grateful it’s an option. My poor mother suffered most of her life with nothing but aspirin and darkness. When they came out with “Fiornal” she thought it was a gift from above!

BTW - I suggest you find a neurologist who listens and cares AND i was told the “prednisone dose pack” should be a very last resort because it’s so hard on your body- that being said, I’ve received it a handful of times in my lifetime.
Also-go online and contact the pharmaceutical company to see if you can get help with your copays - I have!

Jump to this post

@njzmom fiorinol is the only medication that helps/works for me. I’ve tried them all over the past 35 years. My migraines are often a result of barometric pressure changes. I have read to stay indoors during major weather changes, wear sunglasses etc. this does not work, as even when I stay indoors, I can get a migraine from weather fluctuations. It’s tough, I lose too many days to migraine or recovering from meds.

REPLY
Profile picture for dlydailyhope @dlydailyhope

@heysie
My teen son has migraines and I have had them too. Both of us have had mild to moderate concussions when young so this doesn’t help. I also believe ours get triggered by hormone fluctuations, stress, too much screen time, dehydration, poor sleep, etc.

My son's neurologist suggested taking omega 3, vitamin D and magnesium supplements and this has helped. He also suggested making sure to stay well hydrated and add electrolytes to water to help retain more of it. When my son gets aura visual changes starting, his neurologist suggested taking Motrin or Tylenol as soon as possible before the pain and nausea sets in. This all has helped. If my son doesn’t take the pain medication at the first sign of visual changes with aura, he gets significant pain soon after then the nausea and vomiting follows. Putting a cool wash cloth in his head, lying down in a dark room while letting the pain medication kick in also helps.

Jump to this post

@dlydailyhope
All of those triggers are 100% true but at least for me food intolerance (not allergies) is what triggers them and the amounts you eat are also important and what makes it tricky. it a slice of pepperoni pizza for example may not do anything but if combine with another trigger like chocolate the next day or hard candy or lunch meats then boom! Migraine! I'm 59 years old I had migraines since 7. now under control most of the time.

REPLY
Profile picture for marzun @marzun

@dlydailyhope
All of those triggers are 100% true but at least for me food intolerance (not allergies) is what triggers them and the amounts you eat are also important and what makes it tricky. it a slice of pepperoni pizza for example may not do anything but if combine with another trigger like chocolate the next day or hard candy or lunch meats then boom! Migraine! I'm 59 years old I had migraines since 7. now under control most of the time.

Jump to this post

@marzun Good evening, did you find your food intolerances through trial and error or take a test to see what triggers? I am keeping a food diary but its difficult to pin things down. Have to really be strict.

REPLY

Hi there,
Yes to trial an error and reading articles in medical journals and books( before internet) and Food dairy is a good idea if you just focus on key triggers and not every single thing you eat otherwise you stress levels go up and that's no good either. staying hydrated is key but avoid cold water during a meal. and of course exercise.
So here you go. I hope the following helps, I wrote it myself and summarize it with Gemini ( in case you wonder 😃 ) also alcohol is a big one specially white wine. Just so you know I don't take any heavy duty migraine medication because is to hard on my liver and don't help if I have a full blown migraine. Good luck . let me know if this helps .

I wanted to share something that might help if you’ve been dealing with migraines and suspect food could be part of the problem.

Many people with migraines don’t have food allergies — they have food intolerances. That means allergy tests often come back normal. What really matters is:

- How much of the food you eat
- Whether you combine more than one trigger
- How these foods build up over a few days

Even small amounts eaten on different days can add up and trigger a migraine later.

Here are some common ingredients that often cause problems:

1. Nitrates and Nitrites
Found in deli meats (ham, turkey, salami, pepperoni), sausages, and some dried fruits.

2. MSG (Monosodium Glutamate)
Often in packaged soups, broths, salty snacks, and some restaurant dishes.

3. Hydrolyzed Yeast / Hydrolyzed Vegetable Protein
These act like MSG and show up in imitation soy sauces, bouillon cubes, and seasoning packets.

4. Chocolate
Because of caffeine and other compounds that can trigger migraines for some people.

5. Hard Candy and Soda
Sugar plus additives can be a trigger.
(Ginger ale in small amounts may help with nausea during a migraine.)

The key idea is that your system may be sensitive to certain chemical compounds, and when they accumulate, a migraine can appear.

Take care,
Rafael

---

REPLY
Please sign in or register to post a reply.