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Neuroendocrine Tumor - no treatment plan method
Neuroendocrine Tumors (NETs) | Last Active: May 5 8:09am | Replies (164)Comment receiving replies
I have reviewed the CT-scan report which says ...
"Short segment wall thickening at distal ileal small bowel loop. With nearby ileocolic mass (3.8 cm) and adjacent enlarged lymph node, please correlate for neuroendocrine tumor."
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This annual CT-scan was done last Feb 2025 and was monitoring my kidney stones. Nobody said anything about a mass last year. The CT-scan without any contrast wasn't looking specifically for a neuroendocrine tumor but now they are going to look more closely. I'm wondering if it is possible or not based on this incidental finding.
I still don't think I want to get too worked up about this. I still like the idea of "no treatment." Any thoughts?
Along with some labs and a GI consult ... I'm supposed to do a capsule endoscopy.
Replies to "@hopeful33250 I have reviewed the CT-scan report which says ... "Short segment wall thickening at distal..."
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@dadcue Hello Mike,
My NETs were also found incidentally, as were many other members in this group. After the incidental finding, however, treatments and follow-up were planned. I felt it was wise to follow up and also get a second opinion. While the idea of "no treatment" is more pleasant, when it comes to any type of cancer, it might not be the best route to take.
NETs are generally slow-growing, but they are also very small and might not be visible on a lot of scans. It is always best to seek the opinion of a NET specialist who can order the 68GA PET scan (https://connect.mayoclinic.org/discussion/68ga-dotatate-positron-emission-tomography-pet-now-at-mayo-clinic/) and other blood work to determine if there is any metastasis. Here is a list of NET specialists from the Carcinoid Cancer Foundation, https://www.carcinoid.org/for-patients/treatment/find-a-doctor/
It is, of course, your decision to pursue this or not. However, like any cancer, the sooner a NET is dealt with, the better.