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DiscussionHas anyone been diagnosed with Sacral CHORDoma?
Sarcoma | Last Active: Mar 26 4:29am | Replies (16)Comment receiving replies
Replies to "@bluestuart, how did your appointment with the neurosurgeon go? What's the treatment plan? Seeing 3 new..."
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@colleenyoung I am 1 week post surgery. The surgeons were unable to remove most of my clival chordoma tumors. This is less than the optimal outcome I was expecting. This time they want to followup with proton beam radiation, but the closest clinic is 3 hours away, in Chicago, and I cannot afford that long of a stay. I know it's only been a week, but I have had 3 sleepless nights because of the pain.