← Return to Has anyone been diagnosed with Sacral CHORDoma?

Discussion
Michael Lipson (Nospil Musics) avatar

Has anyone been diagnosed with Sacral CHORDoma?

Sarcoma | Last Active: Mar 26 4:29am | Replies (16)

Comment receiving replies
Profile picture for Colleen Young, Connect Director @colleenyoung

@bluestuart, how did your appointment with the neurosurgeon go? What's the treatment plan? Seeing 3 new tumors must've been a real gut punch. How are you doing?

Jump to this post


Replies to "@bluestuart, how did your appointment with the neurosurgeon go? What's the treatment plan? Seeing 3 new..."

@colleenyoung I am 1 week post surgery. The surgeons were unable to remove most of my clival chordoma tumors. This is less than the optimal outcome I was expecting. This time they want to followup with proton beam radiation, but the closest clinic is 3 hours away, in Chicago, and I cannot afford that long of a stay. I know it's only been a week, but I have had 3 sleepless nights because of the pain.