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@elleninz
Hi my diagnosis is the same as yours, but with PMR too.

Actemera ( initially & concurrent with Pred) successfully treated my disease , I went quickly into a remission from GCA /PMR , and quickly tapered off prednisone.

My experience was Virtually no side effects from 12mths on Actemera , immunocompromised of course, affected liver values in blood tests ie slightly raised cholesterol . All minimal though , nothing requiring further medical management. All blood values back to normal after 6weeks off Actemera and I’ve remained in medication free remission .

I believe Actemera saved me from worse side effects that can come from extended use of prednisone , and gave me better quality of life .

Actemera worked so well for me , hoping & wishing the same treatment success for others .

MAYE

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Replies to "@elleninz Hi my diagnosis is the same as yours, but with PMR too. Actemera ( initially..."

@maye33
Hello Maye, Thank you for the response... I too have PMR, I see Rheumy on Friday, looking forward to it. She is suggesting Actemera . I have had PMR since May 2023, Up and Down on Prednisone, lots of flares and issues . Hopefully all goes great for you going forward.
Ellen D