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Stable metastatic NET – should I be pushing harder for PRRT?
Neuroendocrine Tumors (NETs) | Last Active: Feb 7 5:22pm | Replies (20)Comment receiving replies
Hello @donbarks and welcome to the NETs support group on Mayo Connect. I'm glad to see that @dbamos1945 has already shared her experience with NETs and also with PRRT. I would also like to invite @vinnie694 to post with you, as he has also had a good experience with PRRT.
If you would like to read more about members who have had PRRT, here is a link to many of the discussions related to PRRT:
https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets/
How are you feeling? Have these lesions and procedures created problems for you regarding eating or other digestive issues?
Replies to "Hello @donbarks and welcome to the NETs support group on Mayo Connect. I'm glad to see..."
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@hopeful33250 Thank you for the welcome. Really feels good to have a community to chat to about this!
No, I feel perfect. I guess the odd digestive issue, but nothing to complain about. I'm trying to eat healthy, exercise and keep positive.
I live in South Africa and haven't found an NET specialist however my oncologist does have a few patients with NET's. I have bloods and see my oncologist every 4 weeks when I go for my Sandostatin injection. I also see my interventional radiologist every 3 months for an ultrasound then get a PET scan and MRI scan once a year usually 6 months apart.
Based on the feedback I've seen on this post, it does seem that PRRT is a solution I should review only later in my journey. My mind is a little more at ease!