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SusanEllen66 Susan McMichael avatar

Support Group for Those of Us Living With Mild Dementia

Aging Well | Last Active: 17 hours ago | Replies (373)
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Profile picture for Ashley @ashley43725

Hello!
I was diagnosed with Lewy body disease 2 years ago and while I don’t have dementia yet, I was also diagnosed with MCI. I am following this discussion with much interest. I also feel as if I am on a “runaway train “. I still work, but I can tell a difference in my cognitive abilities, as they seem to be slowly declining. It is nice to be able to find a group such as this so one doesn’t feel so isolated. This is my first post. Regards, Ashley

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Replies to "Hello! I was diagnosed with Lewy body disease 2 years ago and while I don’t have..."
Colleen Young, Connect Director | @colleenyoung | Feb 17 5:25pm

@ashley43725 , welcome. I'm tagging fellow MCI members like @SusanEllen66 @edsutton @lhb09876 @mablesmith @peat @fletchette @gardenia123 @osteocurious to join me in welcoming you and introducing themselves.

Ashley, as you notice your cognitive abilities declining, what tools, aids, or tricks have you adopted to help you?

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craigbyrom | @craigbyrom | Feb 17 10:04pm

@ashley43725
Hello Ashley
I recently joined, started following this group.
I am 59 and my onset started a couple years ago with cognitive decline and hallucinations lasting for a couple of months. And then it slowly went away, and I went went back to whatever normal is, there were still some hints of the cognitive difficulties but I forged forward as I was having some heart issues at the same time that were resolved.
But then June 2025 it all came back.
I too am still working, but just not capable of doing what I once was because I can’t sustain the same level I used to by far .
but I still help where I can and I’m surrounded by a lot of support at work.
I felt alone in this and that’s why I searched out this chat.
Hope you get what you need from here.
Know that what you share and talk about will more than likely help others at the same time.
Craig

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SusanEllen66 Susan McMichael | @SusanEllen66 | Mar 2 1:17am

@ashley43725 we are glad you found us. I hope we can all learn from each other.

I have a question. You were diagnosed with Lewy Body Dementia 2 years ago. That is a dementia.

What did your doctor say about your diagnosis? Did they give you the information in writing? I hope so, that way you will be able to recall what they said.

I’m confused about what you were told.

Please let us know.
Again, we are happy you found us!

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