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@joanland - It's been 6 years since my 1st covid 19 infection, it lasted for months. Took 1 year before my taste and smell came back, but has left me as well with the inability to ever feel rested. I too sleep upto 10 hours, awake still exhausted. I also got something more rare from my covid experience, "Myoclonus" which is basically is the involuntary movement of the limbs of the body, including neck, head, arms, legs and hips, they all start moving any time I try to be still, and start ticking every 1-2 seconds. I have seen 2 different neurologists, had every test known they do, and everything comes back normal. I have tried all the drugs and I have adverse reactions so those are all out. I have recently found studies on the benefit of using Nicotine Patches (7mil) and within 2 days I noticed small improvements, longer times betweens the ticks, now up to 45 seconds. Look into it. It's proven through medical studies to improve long covid and other symptoms. What did you do to improve your sleep?
Replies to "@joanland - It's been 6 years since my 1st covid 19 infection, it lasted for months...."
@rzn8 This is what I found on Mayo Clinic's research about why the nicotine patch works on many symptoms: The pathology of the spike protein is that it attaches to ACE 2 receptors and nicotinic receptors decreasing the ability to be released and metabolized. This causes overall inflammation throughout the body. Clotting cascade occurs leading to micro-clotting and hypoxic tissue causing cellular dysregulation. Anti-body response increases spike antibodies that also cause inflammation. Goal of therapy is to help release spike protein from cells, decrease overall inflammation and address micro-clotting with a layered treatment approach.
My dermatologist assisted me in using this protocol with success. She said the low dose nicotine interrupts the spike protein 'hanging on' to our ACE 2 and nicotine receptors which sets up the 'flushing' of the Covid elements. It is our bodies immunity that tried and failed to do this so the nicotine solution assists with this clearing. Perhaps you can find a doctor that will help you with the 'how to' processes to release spike proteins that continue to be attached to you cells after all these years. There are 2 tests your doctor needs to do:
1. Complete T-Cell work up to confirm an overactive immune response, and,
2. SARS-CoV-2 Antibody Profile Test: CoV-2 Antibody Profile. Looking for Spike AB Dilution (normal range < 0.8 U/ml). (Note: some patients called this test D Timer. Test looks for micro-clotting and provides a 'numeric value' for bloods spike protein counts. Mayo Clinic reported in their studies most LC sufferers had counts of 17,000 to 25,000.
@rzn8 I’m sorry you’re suffering so horribly! I was wondering if you were told anything about having SBG Injections (Stellate Ganglion Block) injections? I have had 7 and had horrible body tremors that left my body after my 7th injection. They are injections of Lidocaine into your Parasympathetic Nerves in your neckline area. They’re suppose to shut that part of your body down temporarily and then when it awakens, you’re suppose to feel better. I used it for loss of taste and smell, but that didn’t happen. My body tremors are pretty much gone now, however. I think you might benefit from these. I had mine done at Northwestern Chicago’s Pain Management Clinic. I still am without taste and smell and this is year 4! I am also wearing a 7 mg Nicotine Patch and it has helped with balance and brain fog. Just a little FYI. Much luck and health to you!
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@rzn8 my sleep patterns are 10 to 12 hrs at night plus a 2 hr afternoon nap. however some nights there is no sleep at all. Even with the 10-12 hrs of sleep, fatigue and vertigo continue to rule my life.
First Covid was Early 2021. Second Covid bout was August (last week). Rough, latest 7 to 8 days —- all just days prior to 2025 Vaccine was available. Never recovered and then received the Long Covid diagnosis in October. November = pneumonia. December = bronchitis + awful bone rattling cough. Fatigue never abates. Vertigo appeared in Vertigo and continues to clothe my life like the grim reaper lurking in the shadows.