@rosemoore I tried to respond to you when I first saw this post over a month ago. Unfortunately my response got hung up in a “spinning wheel of doom”. I’m trying again now.
IMHO many PCP’s don’t take CKD seriously until is at least Stage 3 or even Stage 4. It is difficult to get a referral to nephrology before that. Some nephrologists don’t become concerned until CKD reaches Stage 4.
My story: In the early 2000’s I learned from my father-in-law (who was end stage) that hypertension, meds, hydration and diet are relevant to CKD. He had a kidney transplant in 2003 and I started doing my own research. I’m diabetic and found out that was one of two common causes of CKD. I had a pre-transplant evaluation for simultaneous pancreas kidney transplant. I was told that my CKD was mild - moderate and that I didn’t need a kidney transplant. I was accepted & approved for a pancreas alone transplant. I had the transplant in 2005. It was my own personal miracle and my diabetes was controlled for the first time since diagnosis (1975) BUT I still had CKD. In 2008 I self referred to a nephrologist. Since that time I continued to learn about CKD (what kidney function labs are and what they mean, hydration, diet, medication …..) I have had pre-transplant evaluation for kidney transplant. My eGFR has bounced between 14 - 42 since 2011. In the past few years it has settled around 34. My nephrologist once called me Stage 4 but now says I’m Stage 3 and stable. During the kidney pre-transplant evaluation I was accepted and approved for kidney transplant. I was inactively listed at Mayo transplant Center. It is inactive listing because my eGFR is too good for active listing (active listing is an eGFR less than or equal to 20)! Needless to say your numbers sound pretty good to me! How are you doing now?