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Severe Peripheral Neuropathy

Neuropathy | Last Active: Feb 8 5:36pm | Replies (44)

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@phyllisq
I went to Mayo Clinic Rochester Mn in 2017 for EMG and hoped for remedy. All he suggested was Gabapenton and "the Germans use Alpha Lapoic acid with some success.
He also told me it wouldn't get much worse. In 2019 I had Scrambler treatment in Fla with a specialist with that treatment. He then told me that I can get same treatment in Minnesota at Mayo clinic. I then talked to a nurse at Mayo and because it was not covered by any medical plan I have, declined to go. I tried to revisit my original Neurologist at Mayo and they wouldn't take me in without a referral, even though I am a regular patient.
You should call the Jacksonville Clinic and see if they have a different and more comprehensive plan and specialist in neuropathy. At least get a diagnosis of the type you have. I have idiopathic axonal PERPHERAL NEUROPATHY. I have heard that there is a type of ultrasound diagnoses that provides more specific types of neuropathy. It doesnt have the needle pokes with an EMG.
Best of luck and hope something works for you.

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Replies to "@phyllisq I went to Mayo Clinic Rochester Mn in 2017 for EMG and hoped for remedy...."

@footpain I have peripheral neuropathy in my feet this is what I’m trying:
Current plan
Vitamin B12 (methylcobalamin) 1000 mcg
. Benfotiamine 200 mg
• Alpha Lipoic Acid 600 mg
• Acetyl-L-Carnitine 100 mcg
. Magnesium Glycinate 25 mg
. Vitamin B6 4 mg
. L- Arginine 25 mg
. Magnesium Glycinate 400 mg