@santosha i am unsure yet why they checked some brain chemistry levels.
I think my doctor was just very aggressive with everything. we had a long intake. people came in numerous times to get his attention to move on to the next patient and he totally ignored them and continued with me.
and he did not like certain things. and when it came to orders, he just kept saying 'that, that, that, that, and that too.' and i have just been going for all sorts of tests. and my second appointment was about results and not a follow up but orders for more tests. next will be my follow up.
he did not like my sleep and spoke right away about a sleep test. and so i think that led him to think ptau.
and i mentioned my first focal aware, in which i woke up and started to not be able to breath. i gasped for air and took half measures less each time. and i panicked and the gasping became faster. i could not form words, only cluck my tongue and as i breathed in last bit of air i fell into memories of childhood. i was aware and losing self and falling and my arms were paralyzed to break fall so i remember til right before i hit the ground. and then i woke up in the tub. and then i started having the focal aware seizures, with the same issues, but if i do not panic and control my breathing I realize i can formulate these words, i can move my arms . but if panic i shut off oxygen supply and i pass out. i think these are more injurious than the apnea.
he did not like when I mentioned not liking fycompa. I did not like when i got to 8mg, in particular. i would feel a surge in my head, like a pulse. and i mentioned having seizures then where i did not like my postical behavior. I thought i had been rude. i thought that was the fycompa.
He did not like when i mentioned confusion with short term memory, vocabulary struggles and dropping things all being new issues i face
but i will get the BiPap machine for apnea. i stop breathing frequently and lengthy.
so he is correct. but i will let him know again about the breathing episodes i face.
but he is also rigtht about the ptau for me.
while my right side has shown no shrinkage, unfortunately from 2013 to now there is a little damage on the left side i found out in 2023. so when i started to struggle a little, i attributed it to worsening issues on my left hippocampus due to the amount of seizures i was having.
I am worried. i go for lumbar puncture monday and follow up w neuro in march. and i wil be told it is early onset... they think. i believe i did good on the cognitive exam.i will go in and tell them the first three words they told me and then the last five words.
but i will ask why they tested for the Ptau 181. but i think i understand.
thank you for welcoming me. I appreciate the support. excuse
stephen