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@aksandralynn Hi, I also have a MP diagnosis and active daily abdominal symptoms. I'm wondering about the visceral massage you're doing. Was that something you chose to do on your own, or were you directed to by a doctor? I ask because the inflammation I have is causing several new hernias from old surgeries, and I've wondered about gentle massage to kind of move things around in there and potentially alleviate that issue, but I've also been afraid to make it worse. I'm very curious about your experience! BTW, I did 2 rounds of Prednisone last fall and winter and they also made me feel better in terms of energy level temporarily but it was back to my MP normal after I stopped.

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Replies to "@aksandralynn Hi, I also have a MP diagnosis and active daily abdominal symptoms. I'm wondering about..."

@mmusler
Hello and so sorry for a delayed response. A friend shared about visceral massage and I did some reading and it seemed to be something helpful for some. I had about three weeks of massage before going to see the doctor at Mayo. I was also on the prednisone, so I cannot say if the massage was helpful on its own or if it was the steroid making me feel a bit better. I will say though the 1 hour massage twice a week was in itself relaxing and since stress seems to be a contributing factor with MP, I felt I couldn't go wrong. I did not have any stomach issues having the massage. Just make sure it's a light massage and don't get anyone who is trying to work over your stomach like a sports massage :-).
I'm frustrated with this condition and still don't have any answers. 🙁