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← Return to FYI research on Long COVID
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@diverdown1 Thank you for posting. My Long-Covid trip began in May of 2023, roughly 2 1/2 years ago. Yes, I agree that this disease/infection/condition is a bit--. Hang in there. I didn't realize it, but I've made significant improvement in the last 2 1/2 years. My main symptom now is needing at least 9 hours, and often 10 hours, of sleep. My record is sleeping over 12 hours with about 9 of that continuously. It is hard to live a normal life when so much sleep is required. I do hope everone with Long-Covid can find a sympathetic medical professional who acknowledges that Long-Covid exists and does enough research to know where and to whom to refer the patient. There are getting to be more and more knowledgeable doctors. I happened to find that a new neurologist who had joined a nearby large medical clinic had done a research post-doc studying Long-Covid. Good luck in your search. I hope you can find a caring, knowledgeable professional soon.
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@joanland - It's been 6 years since my 1st covid 19 infection, it lasted for months. Took 1 year before my taste and smell came back, but has left me as well with the inability to ever feel rested. I too sleep upto 10 hours, awake still exhausted. I also got something more rare from my covid experience, "Myoclonus" which is basically is the involuntary movement of the limbs of the body, including neck, head, arms, legs and hips, they all start moving any time I try to be still, and start ticking every 1-2 seconds. I have seen 2 different neurologists, had every test known they do, and everything comes back normal. I have tried all the drugs and I have adverse reactions so those are all out. I have recently found studies on the benefit of using Nicotine Patches (7mil) and within 2 days I noticed small improvements, longer times betweens the ticks, now up to 45 seconds. Look into it. It's proven through medical studies to improve long covid and other symptoms. What did you do to improve your sleep?