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llmartin avatar

18 months on a PPI and SFN, a possible connection?

Neuropathy | Last Active: 2 hours ago | Replies (2)

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Profile picture for joanland @joanland

@llmartin Thank you for posting. I did not know of the connection between PPI and neuropathy. I was on a PPI for years, took myself off, a new MD (previous one left the practice) put me back on a PPI. So I've been on and off and on again. During this process, I was diagnosed with idiopathic progressive peripheral neuropathy, and have been under the care of a neurologist, and now under the care of an even more experienced primary care provider. No medical provider has mentioned the possible relationship between PPI and neuropathy. I'll ask at my March appointment. Thank you for your post.

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Replies to "@llmartin Thank you for posting. I did not know of the connection between PPI and neuropathy...."

@joanland thank you for replying. I could not find the link and would probably have trouble sharing it if I did, but in several discussions in the neuropathy support group last year, many contained links to relevant studies. It will be interesting to see if your doctor can tell you anything. There is so much research to keep up with nowadays, sometimes sometimes our doctors don't know and we have to be our own advocate. I do hope you find some solutions that work for you in dealing with this terrible disease. Please keep us posted on your progress. Kind regards, L