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@grandpun
Thank you for your detailed explanation of your experiences. I have just had my RP on 1/12/26. I am so fearful that I will have a similar experience like yourself. I am 57yoa. My prostate was very large at 95cc. Surgery took 5.5 hrs vs the estimated 3hrs. I had to have catheter for 2 weeks and after getting it removed I have zero bladder control. If I move, I am peeing. I get some relief laying down but when I sit up, peeing. Then stand up more pee. I have spoken to Dr's nurse and all I get for a response is "it's way early, healing takes 3-6 months." Well I am extremely worried that continence will never return. I too did kegals before surgery. I am told to wait 6 weeks before continuing kegel physical therapy. This is why I am here. I have searched far and wide for some direction and answers. Oh I forgot to mention my surgery was supposed to have successfully spared the nerve bundles. Has anyone transitioned from total incontinence to continence?

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Replies to "@grandpun Thank you for your detailed explanation of your experiences. I have just had my RP..."

@mgarrett9ball I am 7 weeks post-op and my situation is similar to yours, maybe I am a little better and maybe I can see a little progress over time, but still mostly incontinent when walking for more than a couple of minutes.

I am remaining hopeful that it will get better, doing kegels, working on getting approval to start PT/pelvic floor training, surgeon wants me to start on drugs to treat possible UTI and drug to stop bladder spasms (have not started either drug yet).

Have finally gotten into a better routine (pads, pull ups, changing throughout the day, etc) to keep myself dry and skin healthy.

It's easy for me to get discouraged, but keep thinking of the 3 month milestone, hoping for improvement by then. Also count my blessings that (as far as I know) surgery has made me cancer free, and small setbacks are worth the price.

Good luck! Hope this gets better for you.

@mgarrett9ball
They do say during some of the conferences about prostate cancer that continent can come back within a year for most people. You are very early in your post treatment.

There are many solutions if your incontinent is not Improving significantly over the next few months. This is not a problem that will last your lifetime, If it continues for a long time, you can take advantage of one of Treatment options available. Hopefully your case will be like most other people, and you will get continent back.