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carlarosie avatar

Anyone experienced hair loss while taking or tapering Prednisone?

Polymyalgia Rheumatica (PMR) | Last Active: 7 hours ago | Replies (26)
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Profile picture for elleninz @elleninz

@carlarosie
Hi. My doc wants me to go Actemera for GCA/large vessel vascular disease in the aortic artery in heart. So many warnings. Did you find it easy to manage? Any issues? Thank you Ellen

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Replies to "@carlarosie Hi. My doc wants me to go Actemera for GCA/large vessel vascular disease in the..."
maye33 | @maye33 | 7 hours ago

@elleninz
Hi my diagnosis is the same as yours, but with PMR too.

Actemera ( initially & concurrent with Pred) successfully treated my disease , I went quickly into a remission from GCA /PMR , and quickly tapered off prednisone.

My experience was Virtually no side effects from 12mths on Actemera , immunocompromised of course, affected liver values in blood tests ie slightly raised cholesterol . All minimal though , nothing requiring further medical management. All blood values back to normal after 6weeks off Actemera and I’ve remained in medication free remission .

I believe Actemera saved me from worse side effects that can come from extended use of prednisone , and gave me better quality of life .

Actemera worked so well for me , hoping & wishing the same treatment success for others .

MAYE

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