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Profile picture for carlarosie @carlarosie

@vt23 unfortunately I had to take prednisone for almost 2 years dosing from 50 mg down to five. I’m now on Actemra. When I was off the prednisone, my hair fell out in large clumps. It took approximately three months for my hair to start growing again, but thankfully, it is coming in nicely now.

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Replies to "@vt23 unfortunately I had to take prednisone for almost 2 years dosing from 50 mg down..."

@carlarosie wow that’s quite a while, I can’t imagine. I was only on it for 5 days and it took a tool. I sure hope this won’t take three months, I won’t have any hair left lollllll

@carlarosie
Hi. My doc wants me to go Actemera for GCA/large vessel vascular disease in the aortic artery in heart. So many warnings. Did you find it easy to manage? Any issues? Thank you Ellen