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Support For Those Quitting Prolia

Osteoporosis & Bone Health | Last Active: Mar 2 8:42pm | Replies (266)

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@gently
Thank you for your feedback! I would actually really like to come off Prolia anyway as it is such an expensive drug and there is the constant threat of being cut off it. I was hoping the transition would be more smooth than it is turning out to be. Insurance has a way of throwing a wrench in everything doesn't it!? I have thought about asking about alendronate since even if insurance doesn't cover it it is much cheaper to pay for out of pocket (or with a discount coupon). Its good to know at least that is an alternative if the Reclast is denied by insurance also. I work as a medical coder (one of my specialties is infusions) and I have seen a lot of denials for Reclast or zoledronic acid as well as Prolia for a variety of reasons, the biggest being dxa scores that are too high. Its such a paradox for Prolia, because going off it inevitably means those scores are going to plummet, but it will not continue to be approved once you reach a certain score over an extended time on it. It would be nice if there was a standard protocol followed when denied Prolia after so many years, instead of being left to figure out what to do and facing insurance issues! I'm definitely looking forward to having my Dad here!

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Replies to "@gently Thank you for your feedback! I would actually really like to come off Prolia anyway..."

@teardrop, even Reclast isn't always completely successful "Although the use of a sequential therapy with bisphosphonates (BPs) such as intravenous zoledronate (ZOL) can attenuate the rebound phenomenon, a single ZOL administration may not completely prevent the rebound VFX and BMD loss, in particular if more than 5 injections of Dmab have been administered (9-11)." Alendronate would be a stop gap, not to be depended upon, especially long term.
Is your insurance also denying bone markers?
The paragraph following the above https://pmc.ncbi.nlm.nih.gov/articles/PMC11403318/ recommends the markers
I wonder if https://www.amgensupportplus.com/ would have means to help.
It seems to me that both the insurer and Amgen are incurring liability that they would want to avoid. There isn't time for a protracted appeal. An emergency appeal is most appropriate. How is your provider responding. In CA the insurer would have 72 hours to respond to an emergency appeal.