Hello @lyndidowney05,

First, I want to express my sympathy. Being in constant pain is horrible.

My thought is that it could be caused by adhesions/ scar tissue from prior surgery. You didn’t say whether the surgery for -was it endometriosis? -was done prior to or after the pain started.
I thought that identifying adhesions via scans was tricky, so took the lazy path via Grok AI. Link follows:
https://grok.com/share/c2hhcmQtMw_1701b843-141f-4da1-9e8a-fbea339ee56b
In relation to MRI imaging, it also said, “very fine or early adhesions (e.g., abdominal) may not show clearly, & interpretation requires expertise”

I’m not a fan of AI in general. But I find that it can be a useful place to start. Because all of the links are made available, you can use those to go down your own path (or rabbit hole!)

My husband had a very badly botched appendectomy which, unbeknownst to us, resulted in massive adhesions. Years later, he had a series of internal bleeding episodes caused by the scar tissue pulling on an area of small intestine. But neither the location nor cause could be found - in spite of multiple scans & procedures. I had even suggested adhesions to his Gastroenterologist; but that was rejected. It took 6 months until a diagnosis - finally made by a Mayo specialist, who asked one question- “has he had any abdominal surgery?” Answer “Yes” Then he knew it was the adhesions.
I believe that a lot of the “art” of medicine is asking the right questions.

I hope you are being treated at a high caliber medical facility, like Mayo or a university medical center. I go to Stanford now, after some bad outcomes from a couple of other institutions. Navigating our medical network can be extremely frustrating and complex.

I hope some of this is helpful and that you are able to get a clear diagnosis. And effective treatment!
Take care ~
Gale