← Return to Neuroendocrine Tumor - no treatment plan method

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Profile picture for skjones56 @skjones56

PNET found last January, had 5cm tumor removed last April along with the body an tail of my pancreases and my spleen. The margin was dirty on the pathology report but nothing showed on my first follow-up CT. fast forward to this past October and NM PET CT showed two small lesions in the Liver no definite foci of moderate or intense DOTATATE uptake seen. In January (2026) on a diffusion weighted MRI multiple (11) new subcentimeter hepatic lesions were found and were most likely small metastases. Had NM PET CT done Feb. 2nd confirmed the lesions found on the weighted MRI were metastases. Treatment plan is to start with Lanreotide shots every four weeks.
Point here is be aggressive with your follow-ups and take nothing for granted because I have been without symptoms since I had surgery.

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Replies to "PNET found last January, had 5cm tumor removed last April along with the body an tail..."

@skjones56 Hi and welcome to Mayo Connect. Sorry to hear about the liver metastasis. Are you experiencing any symptoms?

@skjones56 I have a question for you. What has your experience been since spleen removal. Curious because that’s what the doctor scared me into not getting my net removed with saying I’d be worse off if I had it removed.