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Fearing risks of Prolia

Osteoporosis & Bone Health | Last Active: 2 days ago | Replies (113)

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Profile picture for mcchesney @kathleen1314

You say:
"Any input is much appreciated"
I am not sure exactly what your situation is, tscores, fracture history etc., but let me first say that it is very important to see a good endocrinologist to rule out any diseases or conditions which might be driving a diagnosis of osteoporosis.

That being said here is my story. I was diagnosed with osteoporosis of the hip; I tried Boniva; I had side effects with which I did not feel I could live and my dexa results never changed for the better.
Without telling my doctor I stopped the drug. I researched and found a mineral called strontium citrate. I started the strontium citrate and was also on BHRT plus all the usual suspects of good health and exercise needed for bone health.
At my next dexa, my endocrinologist almost skipped into the room. My dexa reading had gone up for the first time in my treatment. I told my doctor that I had stopped the drug and begun strontium citrate. He sat down and on his computer he began to pull up research, some of which I provided, and he also called some other specialists. He told me to continue with the strontium citrate. My results increased with every dexa, until eventually my endocrinologist released me from his care, telling me that I did not need him anymore. The last thing that he said to me was to make sure I took plenty of calcium and to change NOTHING.
Eventually, my dexa showed a normal bone density; the femoral takes a long time to change.
This year my dexa still showed normal bone density and the new TBS program which interprets bone quality showed normal bone quality. All this with no side effects and no fractures.

All of us have to decide what works best for us. But as a friend of mine says who was fracturing and stopped when she began strontium citrate...."We won the bone lottery".

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Replies to "You say: "Any input is much appreciated" I am not sure exactly what your situation is,..."

@kathleen1314 That is totally amazing! Well done to you for doing all your own research. Wish I was that motivated but me, with T-scores of averaging -3.5 I just did what the doc said and on Prolia which is fine apart from rash which may or may not be caused by it. (previous posts). Congratulations to you again. xo