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MVD surgery for Hemifacial Spasms

Brain & Nervous System | Last Active: Oct 2, 2022 | Replies (47)

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@hopeful33250

Hello @dazedandconfused1030

I'm really sorry to hear about your post-surgery problems.
Yes, from what you have said a new doctor might be in order right now. It is always your right to get a second opinion and to seek another primary care doctor if you can't see your current doctor. Also, please connect with the other two discussion groups that Erika, @erikas, mentioned in her post above. As you read what others have to say in those groups feel free to post a question or post a comment on your own situation.

From what you said in your first post, it sounds like memory and double vision are the most significant problems right now. Is that correct? Have you thought about seeing an ophthalmologist in order to check out the double vision problem? That might be a good place to begin until you have an appointment with a new primary care doctor. Also, since your potassium is out of kilter, perhaps an endocrinologist would also be a good next step. I have personally found that a good endocrinologist is an excellent person to put together puzzling pieces of health problems. They can often come up with an answer in a way a more generalized physician cannot. My internist calls an endocrinologist "the internist's internist." That is quite a compliment.

I look forward to hearing how you are doing. Will you post again?

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Replies to "Hello @dazedandconfused1030 I'm really sorry to hear about your post-surgery problems. Yes, from what you have..."

I have one MVD for TN with facial spasms. Got complete relief but the horrible symptoms returned eight months later. I then had a second MVD and again, I achieved complete relief but I had a recurrence exactly eight months later
So I had gamma knife surgery with excellent relief and had a recurrence ten months later.
I know have a hydro morphine pain pump with catheter ending in C3 to get directly in my brain
My doctors call my TN intractable but to me the MVD was the best in achieving relief
The problem is that it did not last
Recovery after the second one was a lot easier than the first one abd I was out of the hospital in four days
I also had some electrolyte imbalance but it all gets better
If you only have the facial spasms no TN I would think it will help
My facial spasms were severe. I could not put two words together. Had to use a dry erase pad to comunícate
The surgery lasts four hours but there is no pain in the incision
I had my surgery at St Luke’s hospital in Houston abd my sweet great neurosurgeon was Dr Viishwanatan
The very best
It was not his fault that I had
Recurrence. It’s the severity of my disease
Good luck to you!