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Newly Diagnosed DCIS Stage 0, Grade 2: Still reeling
Breast Cancer | Last Active: Feb 9 4:37pm | Replies (43)Comment receiving replies
@birdie60 I'm in your same boat, diagnosed in January, DCIS Stage 1. I just posted my first note under DCIS/Nipple Removal/Active Surveillance. My surgery would necessitate full nipple and areola removal, because it is close to that area. Talk about reeling! They repeatedly say mine is low-grade and non-invasive, so surgical removal is to prevent it from ever turning invasive, which may or may not ever happen. So much to think about! I really want to consider actively monitoring it for awhile, but not getting the surgeon on board (although all other MDs I see have said it's a good idea). I had two surgical opinions (already--it's only been 2 weeks!)--with both local (because they set it up) and big teaching institution (my choice), hoping there was a different way to remove the DCIS without the partial mastectomy.
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@orienteer wow you've been able to move quickly in talking to people. I am hoping that you find clarity and peace about your decision. Myself.... I think I'm almost there, but waiting on 2 more test results before I commit in my mind. It's scary... I'm at Stage 0, but still cancer non-invasive. It would be nice to save my nipple and areola, however my DCIS location is closer to the chest wall and i also have a fibroadenoma in the same breast... I just want it all out.... I'm horrified of taking any radiation... so many have said they regretted it, b/c they ended up doing a Mastectomy later.... It truly is a personal decision. Stay in touch.. there are so many on this support group that have been wonderful sharing their experiences... Bottom Line is you have to do what's in your heart for you. You know your own body better than anyone. I'm right there with ya....
God's blessings and guidance for making the best decision for our own situations. :>)