@gravity3
No I have not. I was first diagnosed with osteoporosis at age 34 in 2006, one year post surgical menopause. I had had a hysterectomy for endometriosis and he took both ovaries as well. It was very very hard for me to go through surgical menopause even with hrt. I had every imaginable menopause symptom to the ninth degree. It was my choice to have a dxa scan as a baseline. It was approved by insurance even at age 34 based on my surgical menopause status, and the fact I had been on thyroid meds since age 16 9still am for hypothyroidism). My first scores were -3.2 T score spine and -1.8 T score hip which was a shock at my age. I was prescribed Fosamax but refused to take it at that time as I was terrified of side effects. I was able to get on a full dose estradiol patch and took calcium, vitamin d and started doing weight training. My scores did move to -3.0 spine and -1.2 hip in two years, however, I became anorexic literally overnight around that time. I lost 34 lbs to a bmi 14 and went through six years of treatments and battles before ultimately gaining to a healthy weight. During that time my bone density plummeted even with hrt (you need a certain amount of fat to absorb it right). In 2014 with my scores being -4.1 T score spine my medical team again brought up medication. They gave me a choice of Reclast or Prolia. Oral wasn't a good choice as I was in the process of gaining a lot of weight to get healthier and we did not want to risk GI issues that would make this difficult. I was steered towards Prolia as I was told Reclast can be hard on kidneys and I had some labs that were off at the time (I had gone through a period of purging which really didn't do my kidneys any favors). I don't know how they got that approved without trying anything else. Oh yeah I did take Miacalcin for a year back in 2007 but ultimately stopped due to side effects. I do understand Prolia is a second line drug, not first, for osteoporosis. I think I was denied for Forteo but I don't remember. For whatever reason that was not an option. Maybe due to limits at the time on how long you can take it and my young age. I was fortunate that I didn't have a single side effect from Prolia and it increased my bone density numbers dramatically. But knowing what I do now about coming off it and the dangers of that, had I known then I would have said no to it. I did have trouble getting Prolia one other time. My husband had a double lung transplant out of state at Cleveland Clinic (he was denied at Mayo Clinic in our home state) in 2023. We had to live there for five months. I was due for Prolia while there and I knew that was coming so I had to try to get into a doctor there and get the shot. Cleveland Clinic would not take my insurance and I had to shop around before finally finding somewhere in Cleveland that took my insurance AND had a doctor available in the time frame. I really lucked out! But I remember the stress of trying to figure all that out in the midst of caring for my husband and working full time remotely out of state. He ended up having cancer found in his old lungs only after they were removed (it was missed somehow during all his evaluations) so he also required cancer care on top of transplant. Back to the Prolia, it was denied at first when the physician there put in an authorization, based on me not trying something else first even though I'd been on it for years, but somehow on appeal they got it approved. I have never fractured but I had stress reactions in left tibia several years ago, and a suspicious stress reaction in right foot second metatarsal that is still painful with a lot of dancing (I do ballet/modern dance and for a while pointe work). Beyond those no other bone issues other than very low bone density that had continued to rapidly decline during my anorexic years.