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jerseygirl2 avatar

Inhaled Amikacin and Clofazimine

MAC & Bronchiectasis | Last Active: 3 hours ago | Replies (19)

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Profile picture for westcottkm3040 @westcottkm3040

I was on the 3 first approx 20 months two separate times. Then went off everything for a year as had some adverse drug reactions. Now been almost a year. But net getting very good results this go.
Tried rafubutin this past year. Side effects were terrible. Only on that 2 months. Also tried me on sabuterol in a nebulizer. Only did 4 days. Brutal side effects there as well.
So now on the big 3 and clofazimine. If spit test no better by April will add a 5th drug.
Fatigue is my biggest issue. And any harder cardio like stairs or hills. Can do flat walks no issues.

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@westcottkm3040
Hoping your treatment improves soon with less side effects. Thanks for sharing your experience.
Take care.