Connect
← Return to ProstoxUltra & Prostox CFRT both high risk-switch to RALP?
Discussion
ProstoxUltra & Prostox CFRT both high risk-switch to RALP?
Prostate Cancer | Last Active: Feb 5 9:58am | Replies (24)Comment receiving replies
@kjholz ,
I couldn't find a link or suggestions other than that one statement you quoted. I was quite disappointed after my Prostox test results because after months of research I had decided on SBRT and even had it scheduled. But afer talking it over with my radiation doc, I switched to RALP and tomorrow will be 2 weeks post-prostatectomy. I figured dealing with some short term incontinence and ED would be preferable to lifelong genitourinary toxicity. I'm 67 and in good health, so I'm hoping to get many more active years.
Most men regain continence after a prostatectomy. It's been 5 days since I've had my catheter removed and continence is already improving, so I'm hopeful.
My cancer was 3+4=7, perineural invasion, cribiform, and a high Decipher score of .85 My PSMA PETscan indicated no spread outside the gland, so I wanted it gone before it did. I feel like I made the right decision.
I wish you and your husband the very best outcome possible. It sounds like you're doing your research.
All the best,
quaddick
Replies to "@kjholz , I couldn't find a link or suggestions other than that one statement you quoted...."
Connect
@quaddick My husband is 3+4=7 too. Our radiation oncologist gave us a choice of SBRT or IMRT. Problem is my husband rated himself a "5" ("almost always") on the International Prostate Symptom Score (IPSS) for "weak stream". Had "weak stream" for years. Hasn't gotten worse, stable.
When I read that radiation can exacerbate existing urinary issues (ie to a point of No Stream), I went into research mode. I found out about PROSTOX through Dr. Scholz/Alex (Prostate Cancer Research Institute).
When we told our urologist that we had scored "HIGH RISK" on both Prostox (SBRT) and Prostox (CFRT), he had the same reaction our our radiation oncologist. Hadn't heard of it.
My husband told our urologist that we were leaning towards delaying treatment and needed to order a Decipher test. The phone call went silent for a while....
Our urologist has now referred us to a surgical oncologist who will get in touch and order Decipher for us. (I hope that surgical oncologist won't lob "prostatectomy" into our lap. Sure *you* got RALP, but you, at 67, are a spring chicken compared by my 78 year old husband.
Part of me would rather gamble on IMRT than "prostatectomy".... But first we need the Decipher results just to see how aggressive a monster we have looming in the shadows.
Happy to read you're doing well, oh fellow PROSTOX Outlier!