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jerseygirl2 avatar

Inhaled Amikacin and Clofazimine

MAC & Bronchiectasis | Last Active: 3 hours ago | Replies (19)

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Profile picture for westcottkm3040 @westcottkm3040

I am on the big 3 for the third time in 9 years. They made it go away ish twice. But not touching it this time. I did the amakacin inhalation. Seemed to be working but cause some perm hearing loss. So stopped it. Now added clofazimine. Only been on 2 months. Will do a sputum sample next month and see. Some GI issues. But nothing brutal. The advanced BE gives my MAC too many hiding places. So fingers crossed.
But I’m now only 58. And 6’1” and 175lbs. So I have tolerated the meds pretty good so far.

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@westcottkm3040
How many months/years were your two previous treatments? Are you currently taking 3 antibiotics?
My diagnosis is Mycobacterial Abscessus.