← Return to Proton Therapy: any long term side effects? Any regrets?

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Profile picture for capatov @capatov

I had 25 sessions or proton beam IMRT plus one HDR procedure. I had the outpatient placement of SpaceOAR and gold fiducial markers prior to the start of the IMRT.

Though I never had leakage, bleeding or impotence...I did have frequent and urgent urination post procedure several months. In fact, night time was the worst with waking up every 1 - 1.5 hours a night to urinate. However, I am happy to report that 9 months post treatment my frequency is back to pre-treatment normal. I have no other side effects (incontinence, impotence, pain or bleeding).

So thus far, I feel very blessed to have chosen radiation vs. surgery.

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Replies to "I had 25 sessions or proton beam IMRT plus one HDR procedure. I had the outpatient..."

I went to Mayo's, Rochester. They recommended 5 Proton treatments. Being over 70 years of age, surgery was not an option. In preparation for the 5 Proton treatments, I received Space Oar and 2 tattoo markers smaller than the head of a pin. The oncologist told me ahead of time that I would not need to be lightly sedated for the procedure unless I wanted to. When the tech was ready to begin the Space Oar placement, he highly recommended that I go along with sedation. I am very happy that I decided to do that. Before being put in la la land I was told they would be taping my penis and testicles to my abdomen to keep them out of the way of injecting the Space Oar. Due to the light anesthesia, I was never aware of what was happening. I could hear the voices of the other 3 people in the room, but not hear what they were saying, thus being spared the additional embarrassment from having the procedure along with comments. The 5 Proton treatments were completed Nov. 2023. So far, have not had any permanent ill side effects. I did experience dry orgasms but only for about 1 month. I also had slight problems with urinating, but 3 weeks of Flo Max took care of that. There has been no bleeding or any other problems that I know of. Subsequent blood tests every 6 months have revealed cancer to be undectable. I have never had to get up in the night to urinate. The 5 Proton treatments were completed in less than 2 weeks which was a huge plus since I live 400 miles away. Mayo's and American Cancer Society need to be commended for providing free lodging while undergoing treatments or Chemo.