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I recently had a pulsed field ablation which resulted in pericarditis
Heart & Blood Health | Last Active: Mar 30 12:05pm | Replies (42)Comment receiving replies
@jlharsh
Thank you for this information. I have seen much of it before, but not all. My biggest problem is that I cannot use the original packaging, as it will not fit into any of the medical coolers that I can find. I have found one that works perfectly otherwise, but I must carry the original packaging separately. Further, it is not the planes that I am worried about so much as the hotels and buses that I must travel in. Planes have power sources, but buses often do not and hotel refrigerators are not always at the specified temperature range. It's a challenge.
As for the rilonacept, I will be on it for a minimum of 2-3 years, and perhaps for life.
Replies to "@jlharsh Thank you for this information. I have seen much of it before, but not all...."
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@crraining darn! Other ideas may be to ask your pharmacy for suggestions or consider a car cooler. Specialty pharmacies package medications that stay cool in their packaging for days. Some car coolers have ability to plug in both in the vehicle and hotel, as well as stay cool without a power source for a period of time.