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Profile picture for Janell, Volunteer Mentor @jlharsh

@crraining, welcome to Mayo Clinic Connect. I am glad to see you comment and connect here with red350.

I want to address your travel concerns and introduce you to @jmpuyallup who has commented about medical grade coolers for medication.

I also found some information you may want to review if you haven’t seen it:
Traveling With Medication: https://travelmedicineadvisor.com/how-to-travel-on-a-plane-with-medicine-that-needs-refrigeration/

You mention feeling good with no pain and more energy attributed to Rilonacept. How long will you need to take it?

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Replies to "@crraining, welcome to Mayo Clinic Connect. I am glad to see you comment and connect here..."

@jlharsh
Excellent article. Very comprehensive. Worth the effort to keep PMR pain and stiffness at bay.
Jerry M

@jlharsh
Thank you for this information. I have seen much of it before, but not all. My biggest problem is that I cannot use the original packaging, as it will not fit into any of the medical coolers that I can find. I have found one that works perfectly otherwise, but I must carry the original packaging separately. Further, it is not the planes that I am worried about so much as the hotels and buses that I must travel in. Planes have power sources, but buses often do not and hotel refrigerators are not always at the specified temperature range. It's a challenge.

As for the rilonacept, I will be on it for a minimum of 2-3 years, and perhaps for life.