Connect
← Return to Polycystic Liver Disease (PLD): Let's support each other
Discussion
Polycystic Liver Disease (PLD): Let's support each other
Liver Diseases | Last Active: 6 days ago | Replies (47)Comment receiving replies
Hello, my case is not similar to your current news.... In my case, the cysts were distributed throughout my liver and ranged in various sizes, with several measuring up to 30 cm. During surgery, they were treated using thermal ablation (burning), and my doctor removed more than 27 cysts and drained approximately 3 liters of fluid. About a year later, a few cysts returned, and I'm being monitored. I was unaware I had them until I ended up in the emergency room.
The doctor who treated me mentioned a 10-15 year return to surgery. Does this line up with your story?
Replies to "Hello, my case is not similar to your current news.... In my case, the cysts were..."
@iowachica
Hi
Somehow i never saw this sooner. I had liver de roofing in 1999 and then again in 2014 so about 15 years apart. I recently have had some cyst bleeds and after MRI my liver specialist referred to the surgical team. My right lobe is basically all cysts. They do not recommend anything other than liver resection to remove tge right lobe. I had the same recommendation from a second top surgeon both from highly respectable hospitals. I’ve decided unless tge bleeds are more often or my daily quality of life is affected im going to just continually monitor with my care team.
Best wishes to you.
Connect
@iowachica Thanks for sharing your story. Id say it was close to 15 years between my first and second deroofing and now another 20 years since my last surgery. However im being told that my best option is resection and removing tje right lobe. Big decision for me.