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J tube removal issues: Anyone have a fistula?
Esophageal Cancer | Last Active: Aug 21 4:10pm | Replies (13)Comment receiving replies
Hi @bluedog35 - I wanted to let you know I moved your post here about the fistula draining externally due to a failed J Tube so that you could continue your past discussions with others such as @colleenyoung @maddog72 here talking about J Tube removal issues:
- J tube removal issues: Anyone have a fistula? https://connect.mayoclinic.org/discussion/j-tube-removal-issues-1/
I'd also like to tag @juneau1062 @goldenshadow @naoshapiro1 @manuelo who have spoken to J Tube removal issues in the Esophageal Cancer support group on Connect. Hoping they can share whether they have developed this type of fistula you mentioned.
Replies to "Hi @bluedog35 - I wanted to let you know I moved your post here about the..."
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@lisalucier thankfully I never got a fistula. My partner changed my dressings, probably a few times a day and when I was having a tremendous amount of pain, I went to the wound center to get better bandages to put on the bandage for the J tube. I also use liquid hope as the feeding tube formula and I used it afterwards for food. It's all vegan. It has no chemicals no artificial sugars no onions, no lactose you can get it on Amazon where you can get it from the manufacturer. I know fistulas are very problematic. They take a
long time to heal. I would definitely get in touch with the wound center associated with your hospital so you could get help in learning how to deal with fistula. I'm so sorry for your pain and discomfort.