@stepklin My husband, who also has the same type of seizures, has had great results with the Xcopri. He has been taking 100 mg once a day for 9 months.

@stepklin
Welcome to our group at Mayo Clinic Connect! I'm glad you found us, and I hope you'll find the support you're looking for here.
I'm so glad to hear you have been having success with XCopri, being already seizure free for 4 months! 🙏
Please don't be concerned about my memory issues. Unlike your situation with right hippocampal scarring, mine is on the left side. Since the left hemisphere is language-dominant in most people (~95%), left hippocampal scarring primarily affects verbal memory and language functions—things like remembering names, conversations, and specific moments. It creates those "blank spaces" in memory.
I haven't had my p-tau 181 levels checked yet. From what I understand, it's primarily used to detect Alzheimer's and other neurodegenerative conditions. I'll ask my neurologist whether this test would add value in my case. Thank you for bringing it to my attention.
Out of curiosity, has your doctor mentioned any relationship between seizure frequency/severity and p-tau 181 levels?
Your doctors are attributing the elevated p-tau 181 count to sleep apnea, but you have a different theory about the breathing issues during your focal seizures. Are you currently being treated for the sleep apnea? And have your doctors considered whether the hypoxic episodes during seizures could also be contributing to the elevated p-tau 181?
Chris