← Return to New study - 100% success, zero recurrence, and low toxicity

Discussion
Comment receiving replies
Profile picture for Turkey, Volunteer Mentor @tomrennie

@mnewland99 What have you tried for the peritoneal metastasis? I meant to ask earlier. I also meant to ask how is the ascites?

Jump to this post


Replies to "@mnewland99 What have you tried for the peritoneal metastasis? I meant to ask earlier. I also..."

@tomrennie
Thanks for asking. I don't have ascites like I thought; it's internal neuropathy that feels like my entire abdomen is full of air that it can barely contain. I've been off chemo for almost 2 months now and not better at all. Gabapentin has given me tiny relief, but still difficult to walk much. I was on aggressive gem-abraxanxe since August, but the gem gave me severe cystitis so my UCLA oncologist said to take a month off chemo. I got severe neuropathy in hands and foot (foot recovering but not hands) so I'm goi g to try chemo again if my UCLA doc tells me it's ok. My Hoag oncologist says I shouldn't try it again, but my own observations is that abraxane is the only iv chemo that works on peritoneal cancer. I'm also going to ask my UCLA Dr if he thinks HIPEC would benefit me. Other than that, I'm out of luck.