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anasashesh87 avatar

Someone can help?

Neuroendocrine Tumors (NETs) | Last Active: Feb 6 11:47am | Replies (9)

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Profile picture for Turkey, Volunteer Mentor @tomrennie

@anasashesh87 Hi and welcome to Mayo Connect. I have never heard of a preNET diagnosis like yours, so thank you for sharing. We can all learn from your experiences. Other than restarting Somatuline therapy, what next steps are you discussing with your medical team?

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Replies to "@anasashesh87 Hi and welcome to Mayo Connect. I have never heard of a preNET diagnosis like..."

@tomrennie
Thank you for the warm welcome, I appreciate it.
At this stage, the main plan discussed with my medical team is restarting Somatuline (Lanreotide), given my previous symptomatic and biochemical response. We are also planning close monitoring with repeat blood markers and follow-up endoscopy, and reassessing imaging as needed based on symptoms and lab trends.
I’m still in the process of clarifying the exact diagnosis — whether this represents advanced neuroendocrine cell hyperplasia versus an early or occult NET — and that’s something I hope to better define with specialist input.
Thank you again for your interest and support.