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Polymyalgia Rheumatica (PMR) | Last Active: Feb 13 10:20am | Replies (55)

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@glinda47 thank you. Yes I lost my soul mate to glioblastoma. I took Lipitor for about 4 years and it seemed to work. 2000-2004. I developed colon issues that they first said was crohns disease. I stopped the Lipitor and it disappeared. I did nothing and 20yrs later I had a blocked carotid. I lived with a 220 cholesterol. I went to Mayo and they did testing. One test was the LPa. Mine is 125. My total cholesterol had climbed to 300 with prednisone. Mayo put me on Repatha. Once I developed the allergy I had tried everything that ended in a "tin". Repatha took my total to 120. It took my LDL from 220 to 84. Twice monthly injection. Almost 3 years now no side effects. They are trying to find something else that will take me to under 70 LDL. I have issues with everything we have tried. I am on welchol at the moment trying it.

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Replies to "@glinda47 thank you. Yes I lost my soul mate to glioblastoma. I took Lipitor for about..."

@tuckerp Wow! Repatha rules! I had not heard much about it till recently but it sounds pretty great and certainly has worked well for you. Did you notice any muscular issues improving after dropping the statins? I loved that I read the side effects with Repatha were minimal to none. That's what you want to hear. Most of these meds advertised on TV certainly seem like they were not ready for real time with the very, very serious side effects.
I sure hope you can get those LDL's down with something that is not going to cause issues.
Best to you, tucker.